A Family’s Journey

Phoenix Dolopei was six months old when she was diagnosed with Cri du Chat, a rare genetic condition also known as Five P Minus (5P-). Her mother, Kathleen Howell, describes going through the stages of grief when Phoenix was diagnosed, especially after being told by a genetic specialist that Phoenix would never walk, talk, or feed herself. Kathleen was forced to re-examine, release, and reform the hopes she had for her daughter.Kathleen did her best to educate herself about Cri du Chat ... Read More...